Florida Community Health Action Information Network, Inc.
PO Box 970844
Coconut Creek FL 33097
Contact Information
Address PO Box 970844
Coconut Creek, FL 33097
Phone (855) 3524246
Fax (850) 6599399
Web and Social Media
Mission
Mission

Florida CHAIN (Community Health Action Information Network) is a statewide consumer health advocacy organization dedicated to improving the health of all Floridians by promoting access to affordable, quality health care. We fulfill the critical role of building the capacities for and linking consumer, community and service organizations with health care advocacy. We provide policy education, collaborative networking, training, and communications and organizing tools to the public, allied partners, media, and policy makers.

Florida CHAIN was launched in 1999 to build common purpose and action among diverse groups on issues of health care access. Our priorities include promoting access to health care for those who are uninsured, underinsured, and supported by government programs.

Leadership
CEO/Executive Director Mark Pafford
Board Chair Christine Fisher
Board Chair Company Affiliation Creative Political Foundations
History
IRS Ruling Year 2008
Financial Summary
Revenue vs Expense Bar Graph
 
 
Projected Revenue $600,000.00
Projected Expenses $1,200,000.00
Statements
Mission

Florida CHAIN (Community Health Action Information Network) is a statewide consumer health advocacy organization dedicated to improving the health of all Floridians by promoting access to affordable, quality health care. We fulfill the critical role of building the capacities for and linking consumer, community and service organizations with health care advocacy. We provide policy education, collaborative networking, training, and communications and organizing tools to the public, allied partners, media, and policy makers.

Florida CHAIN was launched in 1999 to build common purpose and action among diverse groups on issues of health care access. Our priorities include promoting access to health care for those who are uninsured, underinsured, and supported by government programs.

Impact

1. Florida CHAIN is keeping Florida first in the Nation for enrollment. Together with the USF Navigator Consortium, and its partners, we implemented an effective ground operation that reached consumers in dire need of affordable, quality health coverage. More than 1.6 million Floridians signed up for 2016 health insurance plans, topping Texas enrollment numbers.

2. This year (2016), the bill to expand Florida KidCare coverage to lawfully-residing immigrant children was approved through its inclusion in the Medicaid conforming bill (House Bill 5101). The measure is estimated to cover an additional 17,000 children and will draw down nearly 29 million dollars from the federal government to help cover their care.

3. Last fall, Florida CHAIN made comprehensive recommendations to policy makers to protect consumers from surprise medical bills. The Legislature passed a comprehensive bill that protects Florida’s consumers from unfair surprise medical bills. This first-in-the-nation type of solution holds consumers harmless in any circumstance where they must go out-of-network through no choice of their own. 

4. While we were able to pass legislation that will result in a more inclusive KidCare program, and one to protect Floridians from surprise medical bills, lawmakers continue to reject a Medicaid expansion legislation that would provide health care access to nearly 600,000 people. House Bill 629, filed by Representative Mia Jones (D-Jacksonville), would have raised the eligibility limit for our state Medicaid program up to 138 percent of the Federal Poverty Level and drawn down over 5.9 billion dollars in federal funds in 2016 alone. Instead, the bill was not heard. Despite going another session without closing the coverage gap, our campaign is growing strong as we focus on building local support in strategic locations such as Miami, Orlando and the Tampa Bay area.

Independent Research has been conducted on this organization's theory of change or program effectiveness? No
Needs

There are many barriers to good health for Florida’s most vulnerable populations. 

Statewide there remain 3.2 million uninsured individuals in Florida. Because lawmakers failed to close the coverage gap, at least 567,000 of these Floridians have no options for coverage. Also for many Medicaid recipients, there are two looming crises: one in the area of childhood oral health and the other for seniors in need of long-term care.

Since 2010, Florida has received poor ratings on multiple oral health indicators for children including an “F” for meeting policy benchmarks to ensure dental health and access for disadvantaged children. The most recent report from the Centers for Medicare and Medicaid Services found that only 27.1 percent of Florida’s children enrolled in Medicaid received preventative dental services in 2014, which ranks Florida among the lowest performing states in the country. During the past decade, the number of dental-related visits to Florida emergency rooms (EDs) increased each year, from 104,642 in 2005 to 163,900 in 2014.

As for our seniors, over the next 22 years, the population aged 85 and older is forecast to grow by 126 percent. Florida currently struggles to meet the demand for elder care services and retains a wait list of 58,000.


Background

 Florida CHAIN was launched in 1999 to build common purpose and action among diverse groups on issues of health care access. Our priorities include promoting access to health care for those who are uninsured, underinsured, and supported by government programs.

For more than 15 years, the organization has collaborated with hundreds of statewide and local partners on advocacy, education, communications, and organizing efforts through its leadership of issue-specific coalitions. We fulfill the critical role of building the capacities for and linking consumer, community and service organizations with health care advocacy. 

 


CEO Statement

Dear Friends,

These are both exciting times and challenging times in our country as we lean into efforts to provide access to health care for individuals and families. The Affordable Care Act (ACA) has been effective in making health care more affordable and accessible for many people, particularly here of Florida. As the law gets implemented, Florida CHAIN remains committed to supporting an effective consumer voice in the debate over health system transformation. We intend to influence how the transformation takes shape while helping to minimize the risks to consumers in a reorganized system.

Nowhere has the impact of the ACA been more dramatic than here in Florida where approximately 1.6 million people selected or were re-enrolled in health insurance coverage through the Marketplace. Nearly 93 percent of new enrollees qualified for a tax credit leading to a significant decrease in the uninsured rate. As of 2014 the rate of 18.3 percent was down from 22.1 percent in 2013.

Although, the ACA also made provisions to expand Medicaid coverage to individuals with family incomes at or below 133 percent of the federal poverty level, because Florida refused to expand coverage to low-income adults, many residents continue to shoulder disproportionate shares of inadequate health care access and poor health outcomes. Florida overall health ranking in the country remains at 33.

CHAIN is committed to meaningful consumer engagement to ensure that people have a voice in policy decisions, the health care organizations that serve them, and their own health care. CHAIN provides a meaningful role for consumers, family members and advocates in health access networks, coalitions and advisory councils. By placing these priorities at the heart of our efforts to transform the way health care is delivered, we expect to promote health more broadly and use sustained advocacy to make the changes necessary to improve the health outcomes for the state.

We invite everyone in the state to join us to make Florida first in the country for health access and outcomes. Now is the time to use your voice and resources to create a healthy Florida.

Board Chair Statement

It’s an exciting time for Florida CHAIN as we continue to work with consumers, advocates and policy makers to increase access to affordable, quality health care.

CHAIN fulfills the critical role of empowering consumers and building the capacity of community organizations to engage in health care advocacy. We provide policy education, collaborative networking, training, and communications and organizing tools to the public, allied partners, media and policy makers.

Through these means, we are leading the statewide Marketplace enrollment efforts under the Affordable Care Act (ACA); spearheading a statewide campaign to expand Medicaid and close the “coverage gap”; and leading the statewide child health care collaborative, KidsWell Florida.

CHAIN has been an integral part of the historic gains made by 1.6 million people enrolling into health coverage, and was part of the obtaining access to health care for 17,000 immigrant children. Still there remain 3.2 million uninsured individuals in Florida, because lawmakers failed to close the coverage gap, at least 567,000 of these Floridians have no options for coverage. 

CEO/Executive Director/Board Comments

Consumer related health care advocacy for access to affordable health care.

NTEE Information
Primary Organization Type Health Care
Primary Organization SubType Health Care NEC
Areas Served
Geographic Areas Served
FL
The entire state of Florida
Goals
HelpWhat is the organization aiming to accomplish? This is the organization's ultimate goal for intended impact.
Florida CHAIN  is dedicated to improving the health of all Floridians by promoting access to affordable, quality health care. Our objectives are that:
  • People will have unrestricted access to health care.
  • People will actively shape their world through civic participation.
  • Health programs will be designed around people with their participation.
  • Health care systems will be accountable.
Strategies
HelpWhat are the organization's strategies for its stated long-term goals?

We educate the public, policy makers and partner organizations about policies impacting access to health coverage through community forums, awareness campaigns, workshops, press conferences, and storytelling.

We organize individuals and partner organizations to take collective action to protect and expand access to health care through activities such as public hearings, visits, and calls to lawmakers.

We build leadership by empowering those most affected by the existing health care structure to tell their stories in order to impact change.

We communicate with the media and serve as the “go to” organization on health access issues in Florida.

We report on decisions made by state and federal agencies that impact access to health care for Floridians.

We rally business and government leaders to speak out about health policy issues that expand coverage for Floridians.

Capabilities
HelpWhat are the organization’s capabilities for doing this? What resources, capacities, and connections support its progress towards long-term goals?

Since 1999, Florida CHAIN has been the premier statewide consumer health advocacy organization working on behalf of consumers to ensure that all Floridians have access to affordable, quality healthcare. CHAIN leverages a small staff of six employees and a budget of $600,000 to drawn down billions of health care dollars for uninsured, underinsured, and vulnerable individuals.

Our Board of Directors is comprised of 16 prominent health care executives from the Florida Health Care Association, Florida Blue (formerly Blue Cross Blue Shield of Florida), University of Miami Miller School of Medicine, Florida Hospital Association and others. They oversee the Chief Executive Officer who manages five employees. Staff work remotely from different parts of the state encompassing west, central and south Florida. The scope of business, however, is statewide.

CHAIN works with a network of over 100 community providers, grassroots organizations, faith-based groups, policymakers, and individual health consumers to advocate for access to affordable, quality healthcare. We are the “go-to” health advocacy organization for the Florida media, quoted almost weekly on issues related to health care access in print, radio and health-focused media outlets.

Indicators
HelpHow will the organization know if it is making progress? What are the key qualitative and quantitative indicators against which the organization assesses its progress toward its intended impact?
Indicators include:
Increased public awareness by media hits and coverage
Increased numbers of coalition members
Increased participation by community leaders and stakeholders in health access campaigns
Introduction and passage of health care access legislation 
 
Progress
HelpWhat has and hasn’t been accomplished so far?

Recent Accomplishments

1. Together with the USF Navigator Consortium, and its partners, we implemented an effective ground operation that reached consumers in dire need of affordable, quality health coverage. Despite firm opposition from state government leaders, more than 1.6 million Floridians signed up for 2016 health insurance plans, topping Texas enrollment numbers.

2. This year (2016), the bill to expand Florida KidCare coverage to lawfully-residing immigrant children was approved through its inclusion in the Medicaid conforming bill (House Bill 5101). The measure is estimated to cover an additional 17,000 children and will draw down nearly 29 million dollars from the federal government to help cover their care.

3. Last fall, Florida CHAIN made comprehensive recommendations to policy makers to protect consumers from surprise medical bills. The Legislature passed a comprehensive bill that protects Florida’s consumers from unfair surprise medical bills. This first-in-the-nation type of solution holds consumers harmless in any circumstance where they must go out-of-network through no choice of their own. Now, the insurance company and the physician will have to work out appropriate payments and the patient will pay only their standard ‘in-network’ cost sharing.

4. While we were able to pass legislation that will result in a more inclusive KidCare program, and one to protect Floridians from surprise medical bills, lawmakers continue to reject a Medicaid expansion legislation that would provide health care access to nearly 600,000 people. House Bill 629, filed by Representative Mia Jones (D-Jacksonville), would have raised the eligibility limit for our state Medicaid program up to 138 percent of the Federal Poverty Level and drawn down over 5.9 billion dollars in federal funds in 2016 alone. Instead, the bill was not heard. Despite going another session without closing the coverage gap, our campaign is growing strong as we focus on building local support in strategic locations such as Miami, Orlando and the Tampa Bay area.

5. Equally important was the enactment of legislation to increase transparency for Florida hospitals and empower patients to fight against hidden hospital fees and overpricing. It could turn out to be one of the nation's most robust health care price and quality transparency law and move Florida into the vanguard of health care pricing and quality measures.

Programs
Description

1. Health Care Coverage Outreach and Enrollment. As part of the state’s federally-funded Navigator consortium with the University of South Florida Covering Kids and Families, CHAIN is the central statewide coordinating organization for Marketplace enrollment activities. For the third year, Florida is number one in enrollment in the nation.

Population Served
Description

2. Medicaid Expansion. Marking another year as the state’s biggest champion for closing the coverage gap, Florida CHAIN advanced an aggressive campaign of policy analysis, coalition building, and legislative advocacy. Individuals who can’t afford Marketplace plans but don’t qualify for the state Medicaid program fall into the Florida “Coverage Gap.” Florida CHAIN is at the forefront of the campaign to educate lawmakers, the media and key stakeholders in order to make the case for expansion. Our commitment to build the state’s capacity to influence Medicaid policy decisions to draw down federal dollars to close the coverage gap is gaining more support.

Population Served
Description

3. Children’s Health. Florida CHAIN and the KidsWell Florida collaborative worked diligently on legislation to cover approximately 25,000 uninsured children by removing roadblocks such as the five-year waiting period for immigrant children who are lawfully residing in the state. The KidsWell collaborative was instrumental in persuading the Florida Department of Health to revise the eligibility rule for enrollment into the children’s special needs health care plan, securing access to specialty services for more than 11,000 vulnerable children in 2016.

Population Served
Comments
CEO Comments

As an organization whose primary purpose is to act as a consumer advocacy organization, Florida CHAIN routinely responds to external policy events that with our attention and direct involvement, improve access and quality of health care for all Floridians. Some efforts, like our health care expansion “campaign”, require CHAIN’s persistence and long term planning efforts to accomplish our goals. Grantors must take into consideration their investment of long term financial support, thus requiring CHAIN to maintain high standards for monitoring cash flow and budgeting precisely.

Our work is normally focused on research, education and advocacy efforts that include base building and working with hundreds of groups throughout Florida. We spend vast amounts of time building relationships for current and future advocacy efforts, as they arise. Grants that we are awarded assist CHAIN in serving the entire state of Florida and allow us to steward these partnerships. Therefore, CHAIN is a nimble efficient group capable of responding on short notice to almost any policy matter requiring attention.

Challenges are logistical in nature, usually. As CHAIN has a staff of approximately 5FTE-9FTE (dependent upon projects and work activity), we take pride in the value of each employee and their contribution to our team as a whole. Our weakest “link” can damage external optics. We are vigilant and our staff works very hard to support one another to circumvent those liabilities. We must be trusted to be a relevant resource in Florida. We strive to be a consistent source of information to the general public and decision making bodies. We make every effort to be the best.

We also continually monitor our unrestricted revenue to ensure we can maintain a high standard of internal controls and reporting to our board of directors and grantors. CHAIN has had a strong 15 year run largely dependent upon grants with very little focus on unrestricted traditional fundraising efforts. A challenge for 2017 will be to increase unrestricted revenue through a new membership program and the integration of a new “signature event” explicitly for fundraising purposes.

Board Chair
Board Chair Christine Fisher
Company Affiliation Creative Political Foundations
Term June 2010 to June 2017
Board Co-Chair
Board Co-Chair
Board
Board Members
NameCompany AffiliationsStatusCertificate*
Dr. Jeff Berman Self employed pulmonologistVotingNo
Elsie Crowell EB Crowell and AssociatesVotingNo
Christine Fisher Creative Political FoundationVotingNo
Julio Fuentes Florida State Hispanic Chamber of CommerceVotingNo
Santiago Leon ACC Hall BrokersVotingNo
Josephine Mercado Hispanic Health InitiativesVotingNo
Linda Merrell Health and Human Service ConsultantVotingNo
Ray Myers Effex AgencyVotingNo
David Pizzi Florida BlueVotingNo
LuMarie Polivka West RetiredVotingNo
Darden Rice St. Petersburg City CouncilmemberVotingNo
Dr. Brent Schillinger PhysicianVotingNo
Twyla Sketchley The Sketchley Law FirmVotingNo
Kim Streit Florida Hospital AssociationVotingNo
Dr. Bernd Wollschlaeger Aventura Family Health CenterVotingNo
Marci Yarbrough Consumer MemberVotingNo
*This individual has been awarded a Certificate in Orientation to Board Service by the Edyth Bush Institute for Philanthropy & Nonprofit Leadership at Rollins College ebi.rollins.edu,
Board Term Lengths 2
Board Term Limits 0
Board Ethnicity
Asian American/Pacific Islander 0
Caucasian 14
Hispanic/Latino 1
Native American/American Indian 0
Other 0
Other (if specified) 0
Policies
Written Board Selection Criteria No
Written Conflict of Interest Policy Yes
Percentage of Monetary Contributions 50%
Percentage of In-Kind Contributions 6%
Constituency Includes Client Representation No
Standing Committees
Standing Committees
Committee Name
Board Governance
Executive
Comments
CEO Comments The CHAIN board of directors oversees governance and provides vision and leadership to CHAIN operations. Florida's changing health care landscape keeps the board engaged and responsive. They understand their fiduciary role and maintain good controls on operations while keeping clear of daily operations.
CEO/Executive Director
CEO/Executive Director Mark Pafford
Term Start Oct 2015
Email mark@floridachain.org
Experience Before coming to Florida CHAIN, Mark Pafford was the CEO of the Arthur R. Marshall Foundation for the Everglades. He also serves as the House Minority Leader for the Florida Legislature where he has held office for eight years. Mr. Pafford worked at The Lord's Place as their Business Development Coordinator and at the Area Agency on Aging of Palm Beach Treasure Cost as their Director of Planning and Policy. 
CEO Salary Range $75,001 - $100,000
Former CEOs
Former CEOs
NameStartEnd
Leah Barber-Heinz Nov 2013July 2015
Laura Goodhue May 2008Sept 2013
Staff
Number of Full Time Staff 5
Number of Part Time Staff 1
Number of Volunteers 0
Number of Contract Staff 1
Staff Retention Rate 100%
Senior Staff
Title Operations and Finance Director
Experience/Biography Lisa Grossman, MSW, was Florida CHAIN's first Executive Directors hired in 2004 and has served various roles within the organization since that time. Before coming to Florida CHAIN, Lisa was the Program Director for the Cooperative Feeding Program, one of Broward county's largest emergency food assistance programs.  
Plans
Organization has Fundraising Plan? Under Development
Organization has Strategic Plan? Yes
Years Strategic Plan Considers 3
Date Strategic Plan Adopted Jan 2014
Management Succession Plan Under Development
Organization Policies And Procedures Yes
Other
CEO Comments CHAIN has continued to improve internal controls over the years. As a major player in health care advocacy in Florida, CHAIN relies heavily on grants to ensure policy makers are ware of consumer needs. That noted, a major effort in 2017 will be to improve individual and major gifts.
State Registration Exempt
State Charitable Solicitations Permit Yes
State Charitable Solicitations Permit Expiration Month Dec
State Charitable Solicitations Permit Expiration Year 2016
Fiscal Year
Fiscal Year Start Jan 01, 2016
Fiscal Year End Dec 31, 2016
Documents
Form 990s
YearDocument
2014Form 990
2013Form 990
2012Form 990
2011Form 990
2010Form 990
2009Form 990
2008Form 990
IRS Letter of Determination
Florida CHAIN_IRS Determination Letter
Detailed Financials
Expense Allocations
Fiscal Year201420132012
Program Expense$993,915$753,696$673,222
Administration Expense$0$0$0
Fundraising Expense$0$0$0
Payments to Affiliates$0----
Total Revenue/Total Expenses1.841.040.63
Program Expense/Total Expenses100%100%100%
Fundraising Expense/Contributed Revenue0%0%0%
Assets and Liabilities
Fiscal Year201420132012
Total Assets$1,687,313$825,876$786,392
Current Assets$1,687,313$824,927$784,719
Long-Term Liabilities$0$0$0
Current Liabilities$52,581$30,430$18,028
Total Net Assets$1,634,732$795,446$768,364
Top Funding Sources
Fiscal Year201420132012
Top Funding Source & Dollar AmountFoundations, Corporations and Individuals $1,703,604 -- --
Second Highest Funding Source & Dollar AmountGovernment $129,447 -- --
Third Highest Funding Source & Dollar Amount -- -- --
Solvency
Short Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities32.0927.1143.53
Long Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets0%0%0%
Capital Campaign
Currently in a Capital Campaign? No
Comments
CEO Comments Losses this past fiscal year were due to the carry over and satisfaction of our $1 million in restricted gifts during 2014. 
Foundation Comments
Voluntary Organizations Active in Disaster
Notes Programs listed here are those that are only activated during a disaster. Some organizations have unified budgeting and do not budget by program. Because of this, some budget fields may be blank or represent an approximation. Organization describes previous experience during the immediate response, recovery or rebuilding phases following a disaster.